The Value of Patient Generated Data (PGD)
e-Health ePoster Library. Prashad R. Jun 6, 2017; 167091; EP08.01
Ms. Reshma Prashad
Ms. Reshma Prashad
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Purpose/Objectives: The objective of this presentation is to discuss the value of patient-generated data. A summary of the dialogue in the industry and academia on the potential benefits of capturing, analyzing and utilizing patient-generated data will be covered. The forecasted benefits and the current progress towards achieving these benefits will be discussed.

Methodology/Approach: An environmental scan of gray literature and an academic literature review were utilized to gather the facts for this presentation. This information was synthesized to derive the findings and arrive at the conclusions that will be presented.

Finding/Results: The findings from the environmental scan and academic literature review revealed that both clinical and financial benefits can be gained (results of both international and national projects will be discussed) from capturing, analyzing and utilizing patient-generated data. However, despite the many benefits, the progress has been slow in the collection and utilization of patient-generated data in Canada. Currently, care is provided based on data collected from episodic interactions with care providers; this data does not accurately represent the patients’ health status. In many cases, it was shown that several interactions with care providers were required before a patient received the appropriate care. This is both costly to the healthcare system and results in unnecessary complications that affect a patient’s quality of life.

Conclusion/Implication/Recommendations: Implications The implications of not utilizing patient-generated data have a significant impact on both clinical and financial outcomes. In terms of clinical outcomes, patients are not benefitting from the proactive collection of data that provides clinicians a better picture of their health status. The collection of patient’s data over a longer period is shown to help providers gain a better understanding of the patients’ health status and facilitates proactive care which results in a better quality of life for patients. In terms of financial outcomes, healthcare organizations are not benefitting from the collection and utilization of patient-generated data. Proactive data collection can facilitate care in the community versus costly care in acute care organizations that results when patients’ health status deteriorate significantly (due to a lack of proactive care) and cannot be handled in the community. There is potential for significant cost savings as a result of proactive management of patients; this is particularly the case for patients with multiple chronic conditions. In 2005-2008 the cost of caring for patients with multiple chronic diseases was $192.8 billion, many of these patients can benefit significantly from proactive management of their conditions which can result in reductions in acute care readmissions. Chronic diseases have a profound impact on society, both in terms of health outcomes and economic burden. Conclusions/Recommendations By discussing the results of the environmental scan and academic literature review, the goal is to create awareness and a call to action for healthcare organizations to leverage patients’ increased use of technology to enable a better quality of care and create a sustainable healthcare system through significant cost savings.

140 Character Summary: The results of an environmental scan and an academic literature review on the value of patient-generated data will be shared with attendees.
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