EP02.04 - Developing a Patient-Reported Outcome Measures (PROMs) Program in Canada
e-Health ePoster Library. Chow E. Jun 7, 2016; 131578; EP02.04
Ellis Chow
Ellis Chow
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Abstract
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Purpose/Objectives: To highlight key activities and considerations for planning and developing a pan-Canadian PROMs program. Methodology/Approach: In response to increased interest in PROMs across Canada, CIHI has launched a new PROMs program and is working with a range of stakeholders to provide leadership in advancing the collection and reporting of PROMs in priority areas. In 2014, CIHI conducted an environmental scan to understand the Canadian and international PROMs landscape. CIHI subsequently hosted a PROMs Forum in 2015 to provide an opportunity for Canadian health leaders to share their perspectives on standardizing PROMs. CIHI currently coordinates a pan-Canadian PROMs advisory committee with the purpose of building consensus on a common approach to PROMs collection and reporting. CIHI has also launched demonstration projects and working groups in selected clinical areas (hip and knee arthroplasty and renal care) to illustrate the value of PROMs information and inform PROMs program planning. Finding/Results: Patient perspectives are required to support a patient-centred approach to health and health care. Patient-reported information includes PROMs and patient-reported experience measures (PREMs). While CIHI has developed the Canadian Patient Experiences Reporting System to support the collection of standardized PREMs, progress needs to be made with advancing a pan-Canadian PROMs program. In Canada, a standardized program for routine PROMs collection and reporting does not exist. CIHI's areas of focus for developing and implementing a PROMs program include: Defining the purposes for PROMs information: PROMs information can be collected at various levels for a range of different purposes, from clinical to policy decision-making. The differing uses and reporting requirements for PROMs data need to be considered to accommodate the needs of diverse stakeholder groups. Reaching agreement on standards for PROMs: Common approaches to PROMs (e.g., tools, modes, frequency, and timing) will ensure comparability of information. Enabling data collection: With limited resources in the health care system, PROMs data should be collected in an efficient and cost-effective manner to ensure low data collection burden. There may be opportunities to leverage existing processes, data holdings and technology to collect PROMs in a manner that meets the latest privacy and security standards. Engaging stakeholders to ensure support and use of PROMs: Support from multiple levels within the healthcare system, including patients and clinicians, is essential to the uptake and success of a PROMs program. Communication and education on PROMs (e.g., interpreting results) should also be provided to ensure the information is being used effectively. Conclusion/Implication/Recommendations: PROMs provide the patient's perspective on aspects of their health status (e.g., physical, mental and social health) that are relevant to their quality of life. There is a need and interest for a pan-Canadian PROMs program to support health system performance and patient-centred care. Agreement on a common approach to PROMs will help ensure that the Canadian PROMs environment will evolve in a coordinated manner. CIHI will continue to engage with stakeholders and work towards developing standards for PROMs in Canada in a manner that balances limited resources in the health system and is sensitive to local, regional, and Canadian needs. 140 Character Summary: CIHI is developing a pan-Canadian PROMs program to support inclusion of the patient perspective in health services planning and evaluation.
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